rockstar

back home :)

Here is a photo/video rundown of our day:

We are off with Mr. Monkey:

From 2010-07-24

Here at the hot parking lot:

From 2010-07-24

Fishies!:

From 2010-07-24

From 2010-07-24

From 2010-07-24

From 2010-07-24

From 2010-07-24

not impressed with the Sharks

From 2010-07-24

Wanted to go swimming with the stingrays. no fear with this kid, the girl next to her about 12 was terrified of the stingrays.




She picked out her own monkey from the gift shop, hasn't let it go since.

From 2010-07-24

All done for the day.

From 2010-07-24

1st birthday morning, presents!!!!!!!!!

We are off to the aquarium today, since its crazy hot out and the zoo would be a bad idea.

She had a huge breakfast with waffles and loves her Elmo chair and other gifts she got.

Party Time

Details of the party:

Date: Saturday, July 31st (original birthday is July 24th, but we are taking sometime for ourselves that day)

Time: 2 pm

Location: Catherine's Home
               153 North Clinton Ave
               Bay Shore, NY 11706
               email: adeadfaerie@gmail.com for more info

Facebook event link:  http://www.facebook.com/event.php?eid=134742349900053

happy about the news

done and done!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

NO SURGERY!!!!!!!!!!!!!!!!!!!!!!!!!

the tumor has shrunk 98% and is too tiny to remove. They will just observe it. She is off her meds except for the one she takes on weekends. That is it, she is done with everything.

We want to thank everyone that helped us through this trying time.

We are sooo happy, her HUGE Birthday party is 7/31/10 @ 2pm, all our welcome to help us celebrate she kicked cancer's ass and turned one.

scans done

The scans are done and they all went so smoothly. She is tired though. We still have no word on the surgery or the complete results of the scans. While waiting for the MIBG the doc stopped in to tell us the CT Scan looked promising. We just hope the jerk cancer is dead and gone.

We are figuring that she might have the surgery this week, we are pretty much waiting by the phone.

Hopefully great news to follow...

scans tomorrow

Scans start tomorrow. We leave the house tomorrow at 730 am, her mediport is accessed at 9am, 1030am is her scan. She has to drink that contrast, I just hope she likes apple juice cause that all she can have for 6 hours.

I hope we have some good / great news for the weekend, we could really use it.

1st bday gift

Thank you so much Great Aunt Leslie and Great Grandma Kulick, Catherine got a music table and a cute book she loves them both.

They even got our cat Ashy a new box, thoughtful ;)

She is our new favorite DJ:

vote

Remember you can vote for Catherine everyday, help her win :)

http://wgntv.tribunepromotions.com/babies/tip_bb_wgntv,0,4232988.ugcphotogallery?index=71675

had a great weekend

We had a great time this weekend, sat in and watch some cool storms go by yesterday and simply did nothing but chill.

Today was the park, her first restuarant visit. Here is a pic, she had a blast!

http://www.facebook.com/photo.php?pid=4311158&l=2274cab84f&id=734073413

And some videos from the weekend:






We are all set for this week..i hope it goes fast with good news.

update

Went to the doc yesterday. It was nice just me and her. She did great. She has to do the shots all weekend though :(

There is a change in her scans:

Tuesday - checkup - make sure those counts are still good.

Thursday - get there at 9am, she will be accessed, get her Cat Scan and the injection for the MIBG Scan

Friday - MIBG

Over the weekend we should know something, the Doc said he would call us at home. Greg and I are nervous wrecks and the 3 of us are going to stay in for the weekend for some good family time before the hellish weeks begin.

We are figuring she might be in the hospital for her 1st birthday but we can't be sure until the results come back and they know what kind of surgery they have to do.

On the good note, she is crawling alot and doing well overall. Her parents....nervous wrecks trying to be strong for this lil one.

doc visit today

The doc visit went good today. Eating has been a little down lately and she got sick this morning. We gave her some medication and it seemed to help for a bit. She is on her shots till Friday then another appointment with the Doctor just to rule out that she does not need a transfusion. Thats always hanging there after her chemo.

Scans are:

7/15 - shot for mibg scan
7/16 - mibg scan - that is the one that will show the docs if the cancer is dead or still active, lets hope this sucker is dead.

7/19 - cat scan

7/23 - hearing test

We think that the surgery will be after her birthday, we hope anyway.

More on friday.

4th of July Pics

We had a lot of fun, she got to swim and play some music for everyone.

cycle 8 done!

Cycle 8 was done on Thursday, it was a long day but we spoke to her doctor. He thinks this is it! Also her port might come out either after her surgery or during. How great is that! We are sooo happy with this news, she is dealing with her chemo like a lil superstar. Although she still needs her last round of shots and we are keeping a close eye on her if she needs a transfusion that still could happen. Her scans are being scheduled the week before her 1st bday.

We are just laying back this weekend, Monday bbq at Granparents Kulicks house with her first dip in a pool.

Eating like a lil horse, many people don't beleive me about how much she enjoys her food and dances while eating. Here is a taste of it.